Sunday, June 2, 2013

UPDATE REGARDING MY FATHER ...

Last week was difficult for my father.  He has always had bad allergies, especially in the Spring, and last week they started kicking-in with a vengeance.  The new rehab center where my father is at was quick to recognize the problem but, as usual, didn't listen to my mother when she repeatedly warned them that allergy medications like Benedryl have always knocked him out, especially in combination with everything else he has been taking.  For this reason, he only takes Benedryl sparingly -- half a dosage every now and then.  True to form, the rehab center ignored my mother, loading my father up with a full dosage of Benedryl combined with other over-the-counter allergy medications and the usual cocktail of pills I can't pronounce.  The result was predictable:  My father was knocked out for most of the week, while my mother -- increasingly alarmed -- kept trying to find out how much Benedryl they were giving him.  Given his previous momentum, it seemed logical to assume that the Benedryl, as predicted, was the culprit.  The neurologist at the rehab center denied that the medication was the problem -- afterall, they're the ones that recommended it -- and instead attributed my father's sudden lethargy to his Parkinson's.  Anyone who had seen my father before the Benedryl would know the neurologist was wrong.  Distressed, my mother called the neurosurgeon who operated on my father to begin with (yes, the one whose botched surgery put him where he is today) to get his feedback.  The neurosurgeon immediately suspected the medication was the culprit and asked my mother to request a complete schedule of all the medication my father was on.  If you can believe it, the rehab center refused to release the list even after my mother's call and the doctor's request.  We eventually got it, but only after some faxes and phone calls went back and forth.  It immediately became clear that my father was being over medicated.  They stopped the Benedryl and -- what a surprise -- he is once again coming back to us, becoming more alert by the day.  That's the good news.  The bad news is that -- if you can believe it -- the rehab center just told us that since my father was 'unresponsive' for much of the week, they're inclined to recommend he be moved to a nursing home.  He's only 67-years-old;  the reason he was unresponsive was because the rehab center doped him up.  There's still every chance, given the right therapies, he can recover, but the system is working against him.  Let's face it, the rehab center isn't fooling anyone.  They get more money from insurance at the beginning of a patient's stay than they do after a few weeks have gone by, and my father has been there for a few weeks now.  They are financially incentivized to move him out, regardless of where he is at in terms of his recovery.  Truth be told, we got mixed reviews about this place even before my father went there:  Some friends of the family had a nightmarish experience there, but a good friend of my father's was one of their 'miracle' patients and is on their board of directors.  If I combine what they put my parents through last week with some other problems -- other requests for the list of medications that went ignored, changing dosages without informing my mother, dinner(s) where they forgot to give my father a main course, a refusal to shave him -- I'm left to conclude the worst.  They've taken a meat grinder approach to patient care ... and why not?  The faster they grind, the more money they get.

13 comments:

Ken Riches said...

Frustrating, the system can be great, or a source of constant stress and hassle, sorry you are in the second category right now. Hope it takes a positive turn soon. Our thoughts are with you!

Lynne said...

Marty, my heart goes out to your family as you deal with the health care crisis in the moment. This is why my sister and her husband took a leave of absence from their work and stayed round-the-clock with their daughter until she finally passed away from cancer. They wanted to make sure she received the proper care. Your poor Mother, what a stress this has placed upon her and it just stinks how the medical community is all about their bottom line and not about a patient's care anymore. Very sad.

Anonymous said...

Marty,
You need to hire an attorney, and let him speak for your family. Trust me you will get action along with proper care,where ever you transfere your father to.

Webster said...

Marty, I am sorry that your father and family have to go through this. It is all so unnecessary, and hard for your Dad to make his complete recovery, which of course, we are all hoping for. Good suggestion by anonymous: if you have a family lawyer, a phone call from him might help turn things around at the rehab center, and keep your Father out of the nursing home.

Thinking of you.

Paula said...

So sorry, what a frustrating situation to be in. Hope things do turn around for the best.

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Beth said...

Ugh. Simply unacceptable. It made me angry to read this...I can imagine how infuriated it made you and your family!

emikk said...

Sorry to hear the bad news, glad to hear the good news. With my dads hospital and rehab stays, the doctors and scheduling nurses did their jobs well, but couldn't trust the "caregivers" to do anything, or anything correctly, things like bed sores from not changing positions. Are they checking for bedsores with your dad, by the way?

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Anonymous said...

ummm who gives a crap.. longest post youve ever made.. go get a coffee.. marty

Anonymous said...

ummm who gives a crap.. longest post youve ever made.. go get a coffee.. marty